Areas of Interest: Medical Sociology, Science and Technology, Race, Ethnicity, and Immigration, Genetics and Genomics, Bioethics, Health Disparities, Health Equity, Mixed Methods
Publications:
Baffoe-Bonnie, M. S. (2022). Lived experience with sickle cell disease: Predictors of altruistic participation in clinical research. Social Science & Medicine, 313, 115353.
Baffoe-Bonnie, M. S. (2019). A justice-based argument for including sickle cell disease in CRISPR/Cas9 clinical research. Bioethics. 2019;00:1–8.
Dissertation Abstract: My dissertation, Sickle Cells to Super Cells: The Alluring Genetic Cure for Sickle Cell Disease, investigates how the sickle cells in individuals living with sickle cell disease are being rapidly transformed into super cells through technological innovation, research participation, and the social and political landscape of the postgenomic era. Centered around the phenomenological concept of cure, which I argue is paradoxically also an ontological concept, I examine how people living with sickle cell disease understand their illness, therapeutic options, and flourishing as various healthcare spaces are taken up with curative and genetic therapies.
